Thursday, 19 May 2016

Diabetes Blog Week Day 4: The Healthcare Experience

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What's your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

So today's topic is on healthcare experiences. I wasn't really sure if I had anything to write about this, because I don't really know the answer to these questions, but to be honest, I think that *is* my frustration.

I'll be honest, I don't really feel that I get anything out of my normal clinic visits.  I get my HbA1c done, and sometimes other tests as well if it's an annual review. I get my feet tickled and my eyes checked, and things like that, and I know that these are important, which is why I go.

But I don't feel that I really get anything else.  I do my own reviews, and my own tweaks and experiments and changes, and I don't really feel I need any help with that - and I'm not expecting a HCP who's only looking at recent data to be able to give me any long term solutions as diabetes is, at it's heart, an ever-changing beast.  And the thing is, I don't *want* help with that - at the end of the day, it's my diabetes and I'm the one living with it. The one consultant I did see who was much more hands on drove me up the wall as he was very critical and would make huge changes based on a couple of days results, which very much tells me that I don't want that kind of relationship.

And 'm not saying I don't get *any* help - I've been through DAFNE training, I've moved onto a pump, and I'm using CGM (though self funding, because bringing up the possibility of funding got me a big fat no...) so they're there for the big things, and the medium things, like the checks.  But it's the little things that I feel I'm missing, and I don't even really know how.  I read about other people who have a great relationship with their diabetes team, and how they have these amazing appointments where they go in with a list of things and it's all very productive, and I'm just sitting there like "How?!" I don't feel like I can do that, because I generally don't have a list, and I feel like I just turn up, get test results, and have a quick chat and then go. 

I guess maybe I just feel that I'd like a better ongoing relationship, and I think a large part of that is that, at my clinic, it's a bit of a crapshoot who you see, so I usually see a different person every time and I get that it's not possible to make sure that you see the same person every time, but at the liver clinic I go to, which is ridiculously busy, I see one of two doctors, and so over the past five years there's a working relationship and trust that has built up.  I guess maybe it's just that I'm looking for, and maybe productive stuff would build out of that, but at the moment I'm not getting it.  I'm looking forward to reading other responses to this topic to see how other people feel about it!

1 comment:

  1. I agree - I'd love a better ongoing relationship with my HCPs. It's hard, there's often a long distance between appointments, some days there's a fill in doctor at the diabetes clinic.